Showing posts with label PIP. Show all posts
Showing posts with label PIP. Show all posts

Wednesday, 20 August 2025

Disabled People STILL Deserve Better

Below is the transcript for my YouTube video "Disabled People Still Deserve Better":

I can’t believe that it was 31 Jan 2019 when I posted a video called “Disabled people deserve better” and, unfortunately, things still haven’t gotten any better for us.  Indeed, the war against the sick and disabled has entered a new phase, given that the anti-migrant message isn’t cutting through as well as the Tories have hoped.  With nothing to offer the ordinary citizens of the UK, the Tories have decided to scapegoat the sick and disabled again because they are cruel, cowardly and totally without conscience.

I would like to say that things might get better under an alternative government but Mr Kid Starver’s party seems to want to punish the sick and disabled for being the victims of circumstance.  The rhetoric coming from the likes of Liz Kendall and Rachel Reeves is chilling, leaving the impression that the scapegoated vulnerable people of the UK would probably be better off under the Tories than under a government led by Tel Aviv Keith which is a horrible thought in its own right.

The UK is going to be having a General Election soon and the vulnerable people of the UK are going to have very little option in whom to vote for to improve our circumstances.  We have little hope for our future whichever major political party takes the reins of government as they seem intent on punishing us for the mistakes both parties have made.

We understand that the Tories are hostile to the sick and disabled and that we will always be treated as third class citizens by them when they are in power but we now have an opposition party that says “you think you’re hard on the disabled?  Hold our beer ‘cos you ain’t seen nothin’ yet”.

Disabled people deserve better treatment than this from a government that is meant to protect its citizens.  If we had better support, perhaps more disabled people could enter the workplace and become so-called “productive members of society”.  If we weren’t treated like criminals and fraudsters and forced to undergo humiliating assessments, we might become more able to cope with our disabilities, especially if those disabilities are of the poor mental health variety.  If the services we rely on weren’t cut to the bone we might have the slightest chance of recovery or simply coping.  If we were given hope we might not be so downtrodden and defeated.  We certainly don’t need the further indignity of not being able to use our Personal Independence Payments for whatever aids our ability to live with our disability by having our cash payments replaced by a voucher scheme which will, in the long run, cost more to administrate than it’ll save, much like the constant disability benefit assessments.

To put things in terms politicians can understand – good, well-funded public services create happier and more productive citizens, disabled and non-disabled alike and, if you provide concrete improvements to people’s lives, give them hope, it’s a definite vote winner.  The Prime Minister and party that delivers hope could stay in power indefinitely.

The current crop of politicians have to understand that the disabled vote is up for grabs and, in the current climate, could well help swing an election one way or another but to do that the parties have to offer something other than abuse and scapegoating of the sick and disabled.  Offer us hope, offer us a future where we are no longer looked down upon and, more importantly, deliver that future.  Disabled people deserve better and it’s about time we got it.

Tuesday, 1 November 2016

PIP Assessment Hell part 3 - The search for evidence and an advocate begins


A compilation of help and advice for people going through the PIP assessment process



I have had a great deal of information, advice and useful links sent my way because of the first video in this on-going tale of my PIP Assessment Hell.  As I don’t want this to all be about me, I want to share this information with viewers of my videos, some of whom may be going through the same ordeal.

This is not everything because I’ve had so many comments sent to me but as I find the information, advice and links I’ve been sent I will add them.  I will also be adding credit for the source of each piece I include on this listing as and when/if I get permission to use their names.

This list is not exhaustive and there may be more help available so if you find any links, have any advice or information, please add it as a comment to whichever video you are watching and I’ll add it to this listing.  (Please let me know if you wish me to use your name to credit you with your help if your screen name isn’t your name.)

If I have missed out any information that I have been sent, I sincerely apologise to those whose help has been erroneously omitted.  If your information, advice or useful link is missing, please contact me so I can add it.

Information

If you have anything not in this list, you can use that to tell them they are not qualified enough and walk back out again.

List of conditions judged suitable for assessment by neuro trained nurses/any health care profession:
Prolapsed intervertebral disc
Lumbar nerve root compression
Sciatica
Slipped disc
Lumbar spondylosis
Lumbar spondylolisthesis
Lumbar spondylolysis
Cauda equina syndrome
Spinal stenosis
Peripheral neuropathy
Neuropathy
Drop foot
Meralgia paraesthetica
Cervical spondylosis
Cervical nerve root compression
Cervicalgia
Nerve entrapment syndrome
Carpal tunnel syndrome
Trapped nerve
Paraesthesia
Tingling
Numbness
Brachial plexus injury
Polyneuropathy
Dizziness
Vertigo
Essential Tremor
VWF
Alzheimer’s

List of conditions judged by the DWP and Atos Healthcare as suitable only for assessment by doctors:
Stroke
Head injury with neuro sequelae
Brain haemorrhage
Sub Arachnoid Haemorrhage
Brain tumour
Acoustic Neuroma
Multiple Sclerosis
Motor Neurone Disease
Parkinson’s disease
TIAs
Bulbar Palsy
Myasthenia Gravis
Muscular Dystrophy
Guillain-Barre Syndrome
Amyotrophic lateral sclerosis
Syringomyelia
Neurofibromatosis
Spina bifida
Polio
Fits (secondary to brain tumour)
Learning difficulties (with physical problems)
Nystagmus
Myelitis
Bells Palsy
Trigeminal Neuralgia
Paraplegia
Quadriplegia
Huntington’s Chorea
Huntington’s Disease
(List provided by John Greene)


Useful Links

(Links provided by Simone Illger)


(Links provided by Adrian Wait)
(Link provided)

(Link provided by Pete Logan)

(Link provided by Steve Jones)

(Link provided by Rachel Carthy)


Advice
  1. Benefits and Work is a company that helps benefit claimants get the ones they are entitled to, helping to prepare their case and giving them all the info they need. There are booklets on various aspects of benefit claims. It is not free, but seems reasonable to my mind. Their Email is campaign@benefitsandwork.co.uk.
  2. Also, although The Citizens Advice Bureau (in phone book, or look online) in your area may be very busy, it's worth trying them for help. They have an online help database but you need face to face support I think. They have phone helplines and local offices
  3. There is also DPAC, Disabled People Against the Cuts, I don't know if they are only campaigners or if they can advise individual people. Find them online.
  4. You should have a support worker through your GP, I'd think. If you do, that person could go with you to the appointment, and maybe also help you prepare all the documents you need. You can ask your doctor.
  5. There are lawyers who specialise in appeals against DWP decisions, some work through the C.A.B., free, others in welfare centres or commercially. You may get a half hour free from a socially responsible lawyer apart from that, to give you advice.
  6. Your local MP might get you support or advise you.
  7. Do you belong to a Church? There can be a very supportive community in a Church, who could help. Your Vicar or Priest would be in the phone book. I wish I could promise results. But know there are caring people around if you are lucky enough to find them.
(Provided by Patricia Stephanie Lowe who would like it made clear that she is not a professional benefits advisor)

Some Information From A Former PIP Assessor (contains advice from a former PIP assessor)

When you have been to your assessment contact DWP and ask for a copy of the notes that the health professional took down.
(Provided by Catherine Heal)

This information is the product of the out-pouring of genuine compassion and generosity that I am happy to spread around to those who need it.  Stay strong.  Don't let the bastards get you down!

PIP Assessment Hell part 4 - Good news and bad