I have
had a great deal of information, advice and useful links sent my way because of
the first video in this on-going tale of my PIP Assessment Hell. As I don’t want this to all be about me, I
want to share this information with viewers of my videos, some of whom may be
going through the same ordeal.
This is
not everything because I’ve had so many comments sent to me but as I find the
information, advice and links I’ve been sent I will add them. I will also be adding credit for the source
of each piece I include on this listing as and when/if I get permission to use
their names.
This
list is not exhaustive and there may be more help available so if you find any
links, have any advice or information, please add it as a comment to whichever
video you are watching and I’ll add it to this listing. (Please let me know if you wish me to use
your name to credit you with your help if your screen name isn’t your name.)
If I
have missed out any information that I have been sent, I sincerely apologise to
those whose help has been erroneously omitted.
If your information, advice or useful link is missing, please contact me
so I can add it.
Information
If you
have anything not in this list, you can use that to tell them they are not
qualified enough and walk back out again.
List of
conditions judged suitable for assessment by neuro trained nurses/any health
care profession:
Prolapsed
intervertebral disc
Lumbar
nerve root compression
Sciatica
Slipped
disc
Lumbar
spondylosis
Lumbar
spondylolisthesis
Lumbar
spondylolysis
Cauda
equina syndrome
Spinal
stenosis
Peripheral
neuropathy
Neuropathy
Drop
foot
Meralgia
paraesthetica
Cervical
spondylosis
Cervical
nerve root compression
Cervicalgia
Nerve
entrapment syndrome
Carpal
tunnel syndrome
Trapped
nerve
Paraesthesia
Tingling
Numbness
Brachial
plexus injury
Polyneuropathy
Dizziness
Vertigo
Essential
Tremor
VWF
Alzheimer’s
List of
conditions judged by the DWP and Atos Healthcare as suitable only for
assessment by doctors:
Stroke
Head
injury with neuro sequelae
Brain
haemorrhage
Sub
Arachnoid Haemorrhage
Brain
tumour
Acoustic
Neuroma
Multiple
Sclerosis
Motor
Neurone Disease
Parkinson’s
disease
TIAs
Bulbar
Palsy
Myasthenia
Gravis
Muscular
Dystrophy
Guillain-Barre
Syndrome
Amyotrophic
lateral sclerosis
Syringomyelia
Neurofibromatosis
Spina
bifida
Polio
Fits
(secondary to brain tumour)
Learning
difficulties (with physical problems)
Nystagmus
Myelitis
Bells
Palsy
Trigeminal
Neuralgia
Paraplegia
Quadriplegia
Huntington’s
Chorea
Huntington’s
Disease
(List
provided by John Greene)
Useful Links
(Links
provided by Simone Illger)
(Links provided by Adrian Wait)
(Link provided)
(Link
provided by Pete Logan)
(Link
provided by Steve Jones)
(Link
provided by Rachel Carthy)
Advice
- Benefits and Work is a company that helps benefit claimants get the ones they are entitled to, helping to prepare their case and giving them all the info they need. There are booklets on various aspects of benefit claims. It is not free, but seems reasonable to my mind. Their Email is campaign@benefitsandwork.co.uk.
- Also, although The Citizens Advice Bureau (in phone book, or look online) in your area may be very busy, it's worth trying them for help. They have an online help database but you need face to face support I think. They have phone helplines and local offices
- There is also DPAC, Disabled People Against the Cuts, I don't know if they are only campaigners or if they can advise individual people. Find them online.
- You should have a support worker through your GP, I'd think. If you do, that person could go with you to the appointment, and maybe also help you prepare all the documents you need. You can ask your doctor.
- There are lawyers who specialise in appeals against DWP decisions, some work through the C.A.B., free, others in welfare centres or commercially. You may get a half hour free from a socially responsible lawyer apart from that, to give you advice.
- Your local MP might get you support or advise you.
- Do you belong to a Church? There can be a very supportive community in a Church, who could help. Your Vicar or Priest would be in the phone book. I wish I could promise results. But know there are caring people around if you are lucky enough to find them.
Some
Information From A Former PIP Assessor (contains advice from a former PIP
assessor)
When you have been to your assessment contact DWP and ask
for a copy of the notes that the health professional took down.
(Provided
by Catherine Heal)
This information is the product of the out-pouring of genuine compassion and generosity that I am happy to spread around to those who need it. Stay strong. Don't let the bastards get you down!
You are a star mate. Sending you my love and thoughts
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